UK hypermobility sufferers wait up to 21 years for diagnosis, study suggests

Awareness of disorders such as hypermobile Ehlers-Danlos syndrome is low among British healthcare professionals

People in the UK with hypermobility conditions are waiting up to 21 years to be diagnosed while suffering from symptoms ranging from chronic pain to partially dislocated joints, research suggests.

The study of more than 2,000 people, which was led by the University of Edinburgh and described as the largest of its kind in the UK, indicates awareness of hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS) is low among British healthcare professionals.
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