Sufferers of cruel neurological condition that sees the body shut down - as well as TWO sets of heartbroken parents who've already lost a son each to the disease and now fight for their other sons' lives - BEG the State to act 'before it's too late'

Daily Mail (News)

'There are 200 of us begging for our lives.' A new drug is shown to slow progression of Friedreich's Ataxia.

But after 700 days, why is the State is still undecided on helping desperate families...

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